• 800-594-4585
  • info@tsfusa.org
  • Holmdel, NJ

Professional Leaders

Doctors

Knowledgeable and caring providers stand at the first line of defense in identifying and managing care of Turner Syndrome. There are many ways to improve care outcomes.

  • Diagnosing girls as early in life as possible
  • Following the recommendations of the Clinical Care Guidelines
  • Staying current on new findings in clinical research
  • Improving clinical standards and access to care

Professionals of varied expertise and interest are sought to enliven their life’s work and to broaden knowledge, resources, and information about Turner Syndrome.

Realize your impact!  

The list below shows past and current of initiatives of medical professionals with TSF. Professional Members are encouraged to learn about these initiatives and get involved in a way that is meaningful to them. Calls for contributors will be posted on the News & Announcements page, or you can email network@tsfusa.org to let us know how you would like to be involved.


Initiatives

Council on Cardiology (COC)

The Turner Syndrome Council on Cardiology (COC) is an initiative of the Turner Syndrome Foundation dedicated to improving cardiac care outcomes that can save lives. A multi-disciplinary faculty of experts join to address complex issues and core objectives:

  • To promote the importance of early diagnosis and best possible care of congenital and acquired cardiovascular disease in patients with Turner Syndrome
  • To raise clinical awareness of cardiac care guidelines for Turner Syndrome patients throughout life
  • To emphasize preventive cardiac care in an at risk population
  • To develop a crisis plan to recognize, diagnose and treat an emergent cardiac event in patient with Turner Syndrome
Webinars

TSF’s “WE” Learn Webinars bring expert speakers from a variety of specialties to discuss the topics most important to individuals with TS. Medical professionals are invited to join the ranks of speakers such as Dr. Kutluk Oktay, Dr. Michelle Schweiger, and Dr. Siddharth Prakash in giving a presentation for the TS community. Individuals interested in giving a presentation may complete this form.

Research Committee

The Research Committee meets to review, plan and forge new research initiatives and collaborations with universities and scholars to yield new information pertaining to all aspects of Turner Syndrome.

Development Committee

Philanthropists, fundraising professionals, writers, investors, and development officers are sought to join the Development Committee of the Turner Syndrome Foundation. Statistically, there are limited allocated funds directed to women’s health. TSF is assembling a group of socially conscientious individuals with philanthropic interest to contribute to support women’s health to join the Development Committee.

Insurance Committee

The Insurance Committee addresses insurance issues patients cope with in appealing for diagnostic testing, medication, and therapies. Legal and insurance specialists convene to identify gaps in coverage, discover barriers to care, and plan advocacy programs to improve access to specialized care for all.

Council on Infertility (COI)

The Council on Infertility (COI) was designed to approach a sensitive subject affecting the lives of women with Turner Syndrome. Research has identified that as women grow into adulthood, the issue of family planning and infertility needs considerable attention to adequately address these concerns. In 2016, the work of the COI culminated in published guidelines and recommendations on infertility and family planning for healthcare providers. Read Fertility Preservation in Women with Turner Syndrome: A Comprehensive Review and Practical Guidelines.

Medical Education

TSF, in collaboration with Scherer Clinical Communications and AACME, educated more than 27,000 physicians through its online CME entitled, “Identifying and Managing Care of Girls with Turner Syndrome”. This expired activity was fully funded by a grant from Novo Nordisk.

Transition Task Force

TSF, in collaboration with the Endocrine Society’s Hormone Health Network, has contributed in collaboration with an esteemed faculty of medical care providers to develop helpful resources for pediatric providers and patients. The goal of the task force is to provide resources that promote a smooth transition from pediatric to adult care management.